Dad to Dad 71 - John Crowley of Princeton, NJ Saved His Kids' Lives By Finding a Cure to Pompe Disease
8 nov 2019 ·
1 h 18 min. 3 sec.
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Descrizione
Meet John Crowley, a special father of three kids with special needs. Two of those children have a rare genetic disorder called Pompe disease. John and his wife Aileen were...
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Meet John Crowley, a special father of three kids with special needs. Two of those children have a rare genetic disorder called Pompe disease. John and his wife Aileen were told that Meghan and Patrick would not live very long. So, they took matters into their own hands and helped develop a drug that successfully treats the disorder. They formed a successful RX company, Amicus, whose mission is to find treatments for rare diseases. Their story was told in a book, a movie starring Harrison Ford and by the President of the United States in a joint session of congress. And today, John Crowley tells his story to our host David Hirsch, on this Dad to Dad podcast. You can find out more about John’s mission at www.Amicusrx.com, or he can reached via Linked In at linkedin.com/company/amicus-therapeutics/. Also: https://wish.org and https://globalgenes.org For more information about the Special Fathers Network go to: www.21stCenturyDads.org.
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Informazioni
| Autore | David Hirsch |
| Organizzazione | David Hirsch |
| Sito | - |
| Tag |
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