Copertina del podcast

WeHaveAVoice

  • Rare Disease Day

    13 FEB 2024 · Host, Kevin Jess, talks about Rare Disease Day which is just around the corner
    Ascoltato 12 min. 31 sec.
  • New Guidelines to Revolutionize Care for Huntington's Disease Patients

    21 DIC 2023 · Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD
    Ascoltato 13 min. 4 sec.
  • Bunny Clark and the 10th Annual Huntington's Heroes Walk

    23 MAG 2023 · Bunny Clark talks about The Walk for Huntington's Disease May 28th
    Ascoltato 13 min. 37 sec.
  • Ascoltato 22 min. 19 sec.
  • WeHaveAFace! What's next?

    16 MAR 2023 · Kevin Jess announces charity closings and discusses what's next for WeHaveAFace.
    Ascoltato 20 min. 9 sec.
  • Worthlessness

    29 SET 2022 · Kevin Jess talks about the feeling of worthlessness and how the media may drive this feeling.
    Ascoltato 21 min. 10 sec.
  • Coffee Talk with Kevin and Jen (Chat #7)

    1 LUG 2022 · Jen and Kevin discuss possible implications of the overturning of Roe v Wade for the Huntington's Community
    Ascoltato 38 min. 34 sec.
  • Coffee Talk with Kevin and Jen (Chat #6)

    27 GIU 2022 · Jen and Kevin talk about hope, testing and other topics
    Ascoltato 1 h 21 sec.
  • Coffee Talk with Jen and Kevin (Chat #5)

    16 GIU 2022 · Kevin and Jen talk about a number of things but are focusing on the upcoming International Education Day, June 25
    Ascoltato 44 min. 4 sec.
  • Kevin speaks about memories and nurturing relationships

    14 GIU 2022 · Kevin talks about memories of his wife Sheila and how it's important to nurture friendships
    Ascoltato 28 min. 15 sec.

WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all...

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WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount!
Visit: www.WeHaveAFace.org/Radio for more information.
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