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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
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Episodi & Post
Episodi
Post
30 APR 2026 · To Submit an awareness video: https://www.help4hd.org/events-1/hd-awareness-video-submissions/form
To request a Help 4 HD HD Awareness Swag box: https://www.help4hd.org/events-1/hd-awareness-month-2026/form
17 APR 2026 · After being publicly dismissed as “the swamp,” by a government official, Rachel Reising is turning that moment into something bigger -using her voice to advocate, to challenge, and to live out loud for herself and the entire community.
10 APR 2026 · Katie Jackson and Jamie Holloway fill in for Lauren to discuss how chorea (movement) affects people with Huntington's Disease.
12 MAR 2026 · Sarina Smith joined Lauren to talk about her recent trip to Washington D.C. for Rare Disease Week and what she learned from other rare disease groups.
13 FEB 2026 · Every year around Valentine's Day, we do a "Love in HD" show. This year, Heather and Nathan Wilmoth joined me to share their love story and how that love fuels not only their day-to-day life, but also their advocacy efforts.
5 FEB 2026 · For more information about Susanna's podcast and health/wellness coaching, please visit her website https://www.geneticfrontiers.org/
Susanna Smith, MPH, is a health & wellness coach, who trained through Duke University Health & Well-Being Program. Susanna specializes in coaching people who live at risk because years ago when she found out about her own genetic risks, she needed a coach to help her learn how to live with difficult genetic information. She never found that person so she trained to become that person for other people.
16 GEN 2026 · Jeremy Renz joined Lauren to talk about the petition to the FDA that he and other advocates created and why it's important we support it.
Our Call to Action: Both petitions will be closing on Sunday, 1/18/2026. Please take the time to sign and share them before then!
The "non-organizational" petition: https://www.change.org/p/accelerate-breakthrough-drug-approval-for-huntington-s-disease-uniqure-amt-130
The "organization-led" petition: https://www.change.org/p/bring-hope-to-huntington-s-disease-families-urge-the-fda-to-uphold-accelerated-approval?recruiter=1395431917&recruited_by_id=5eb38b60-c0f9-11f0-833a-3786d08ac93b&utm_source=share_petition&utm_campaign=starter_onboarding_share_social&utm_medium=copylink
8 GEN 2026 · Katrina Hamel joins Lauren to talk about what Help 4 HD has planned for 2026. Take a listen!
You can also register to attend the events mentioned at the website: https://help4hd.org
6 NOV 2025 · Please reach out to Lauren or Katie if you want contact information for the FDA.
30 OTT 2025 · Happy Halloween! Melissa and Lauren talk about JHD and how we can adapt for our loved ones for holidays like Halloween.
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every...
mostra di più
Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Lauren Holder, each week for incredible programming and don’t forget to share this channel with your colleagues, family and friends. **Help 4 HD Live! is made possible through an education grant from Teva Pharmaceuticals and the Griffin Foundation. Thanks for tuning in! Help 4 HD International Inc. **Please consult with your own physician for advice about any medical recommendation.
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Informazioni
| Autore | Help 4 HD Live! |
| Organizzazione | katrina hamel |
| Categorie | Salute e benessere , Attività senza scopo di lucro |
| Sito | www.spreaker.com |
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