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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other...
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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other organs that controls our thinking, emotions, physical and general health.
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
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Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
BeewellwithMS podcast by Dr Agne Straukiene
BeewellwithMS podcast by Dr Agne Straukiene
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12 SET 2024 · In this episode of 'BeeWellwithMS', Dr. Agne Straukiene MS Neurologist is joined by Professor Jeremy Hobart for a discussion on advancements in measuring health outcomes for multiple sclerosis (MS). Professor Hobart, a renowned clinician and advisor, elaborates on the evolution of measurement tools, their impact on current practices, and the increasing focus on patient-centered outcomes. The conversation highlights the extended history of instruments like the Expanded Disability Status Scale (EDSS) and the need for innovations to enhance personalised medicine. They discuss the limitations of these historical tools, ethical considerations in MS research, and the importance of structured and sensitive measurement processes. Despite challenges, there are promising developments in utilising real-time data and patient-based assessments to improve clinical outcomes and treatment efficacy in MS, emphasising a call for coordinated global efforts and advancements in clinical trial designs.
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1 SET 2024 · In this episode of BeeWellwithMS, Neurologist provides valuable advice for managing multiple sclerosis during the transition from summer to autumn. The discussion covers handling anxieties related to the new school year, the importance of seasonal vaccinations such as flu and HPV, and creating a cozy home environment for the colder months. The host emphasises the importance of batch cooking, adjusting wardrobes for the changing temperatures, and ensuring home safety with tools like non-slip mats. Managing fatigue, maintaining skin care, staying hydrated, and continuing physical exercise are also highlighted as essential practices. The episode concludes with tips on holiday preparation, the use of assistive technologies, and ensuring pets' comfort during the colder season. Additionally, a reminder is given to take daily Vitamin D3 supplements.
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1 AGO 2024 · In this enlightening episode of "BeeWellwith MS," Dr. Agne Straukiene explores the transformative role of digital platforms in the self-management of multiple sclerosis (MS). Joined by Finn Moxson, an experienced MS coordinator, the discussion delves into the integration of technology into patient care, emphasizing the importance of self-management and the significant impact of digital health tools.Key Topics Covered:
- Importance of Self-Management in MS:
- The role of self-management in enhancing the quality of life for people living with MS.
- The limitations of conventional assessment tools like the Expanded Disability Status Scale (EDSS) and the Multiple Sclerosis Functional Composite (MSFC).
- Digital Health Tools:
- Introduction to the Patient Knows Best (PKB) digital platform used at Torbay Hospital.
- Real-world outcomes from the PKB User Experience Project.
- Integration of patient-reported outcomes (PROMs) into MS management to capture the full spectrum of the patient experience.
- Global Patient Reporting Outcomes Initiative:
- The initiative’s aim to bridge the gap between clinical research and patient care by integrating patient-reported outcomes.
- The significance of patient voices in shaping effective care strategies.More info read here: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1407257/full
- Challenges and Solutions in Digital Platform Implementation:
- Addressing digital literacy and cognitive issues among the MS population.
- Strategies for improving recruitment and engagement with digital platforms.
- Future Directions and Innovations:
- Plans for further development of digital tools, including augmented reality for motor and cognitive function assessment.
- The importance of interconnected health records and a unified approach to patient-reported outcomes.
Guest Insights: Finn Moxson shares his background in psychology and his experience as a clinical research practitioner. He discusses his role in coordinating the PKB platform, the benefits observed from its use, and the positive feedback from patients. He emphasizes the necessity of continuous communication and education to ensure successful engagement with digital tools.
Call to Action: Listeners are encouraged to engage with digital health tools, participate in surveys and questionnaires, and contribute to the ongoing improvement of MS management. Agne and Finn invite listeners to share their experiences and join the conversation on social media and the podcast’s website.
Closing Note: Self-management is a vital aspect of living well with MS, and digital tools offer empowering support. By incorporating these tools into daily routines, patients can take a proactive role in managing their health and improving their quality of life.
Contact Information: Listeners can reach out with questions, comments, and suggestions for future episodes through social media channels or the podcast’s website at http://www.healthcare.org
Prisms Toxonomy article: https://pubmed.ncbi.nlm.nih.gov/26377727/#:~:text=Results%3A%20The%20PRISMS%20taxonomy%20comprises,term%20condition%20or%20their%20carer.
Our Connect plus app: https://www.hci.digital/case-studies/connectplus-app-ms-case-study/
Stay Connected: Follow "BeeWellwithMS" on social media for more resources and updates.
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22 LUG 2024 · Agne, a neurologist, leads a guided meditation focused on giving and receiving to help individuals with chronic conditions. The meditation aims to cultivate inner strength, acceptance, and compassion. Participants are encouraged to create a comfortable and safe space for a relaxing experience.
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26 GIU 2024 · In this episode of 'BeeWellwithMS' podcast, host Dr. Agne Straukiene Neurologist discusses the impact of heat waves on individuals with multiple sclerosis (MS), particularly focusing on the Uthoff's phenomenon and pseudorelapse. She explains that increasing body temperature can temporarily worsen MS symptoms and provides strategies to manage overheating, including using various cooling gear like vests, scarves, hats, portable fans, and cooling towels. Additionally, Dr. Straukiene offers practical advice on staying cool, such as seeking air-conditioned environments, staying hydrated, taking breaks, and consulting healthcare providers for persistent symptoms.
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15 GIU 2024 · In this engaging episode of BeeWellwithMS, Dr. Agne Straukiene hosts and guest speaker Associate Professor Will Young from the University of Exeter dive deep into the transformative potential of augmented reality (AR) and motion and cognitive tracking technologies in multiple sclerosis (MS) care. They explore the exciting MS PARAMS Phase One Study, which aims to validate these innovative tools for assessing motor and cognitive functions in MS patients. Professor Young shares his fascinating journey through research in rehabilitation psychology and sensory cueing, shedding light on the profound impact AR could have on enhancing patient care. They discuss the study's goals, the technical challenges to anticipate, and the promise these technologies hold in making MS assessments more accurate and personalized. Listeners are invited to get involved in this groundbreaking research, with detailed information on how to participate in the study. This episode is not just informative; it’s a call to action for anyone eager to contribute to the future of MS care. Join us, as we envision a future where cutting-edge technology empowers both clinicians and MS patients, ensuring better management and improved outcomes. Your involvement could be the key to unlocking a revolutionary approach to MS care. Don't miss out! If you are interested in learning more about the PARAMS phase one study, contact Prof Young at .
Episode Breakdown:
- 00:00 Introduction to BeeWellwithMS Podcast
- 00:36 Meet Associate Prof. Will Young: A Pioneer in AR Research
- 01:11 Exploring the MS PARAMS Phase One Study
- 01:34 The Journey into Augmented Reality
- 03:52 Technical Validation and Study Objectives
- 07:01 Challenges and Benefits of AR in MS Care
- 19:10 Participant Recruitment Process and Study Details
- 30:44 Conclusion and How to Get Involved
Tune in and discover how you can be part of this innovative step forward in MS care.
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25 MAG 2024 · A series of interviews and discussions highlighting the importance of raising awareness for multiple sclerosis (MS) at Torbay and South Devon NHS Foundation Trust.
00:00 Introduction
01:47 Interview with Finn Moxon - Importance of Raising Awareness
03:30 Interview with Suzanne ( MS Society) - Spreading Awareness
05:08 MS Admin Team Insights
04:56 Importance of Early Identification - Sarah Hughes MS nurse
06:00 Engagement with the coleagues experts
07:08 Encouraging Lifestyle Management
09:50 Closing Remarks
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23 MAG 2024 · In this episode of 'BeeWellwithMS' podcast, Dr. Leo Russell, a principal clinical psychologist at the Devon Partnership in Exeter, shares his expertise on functional neurological disorder (FND) and its interplay with multiple sclerosis (MS). Dr. Russell discusses the nature of functional symptoms, their psychological roots, and the implications for patients. He emphasizes the importance of a multidisciplinary approach in treatment, including psychotherapy. The conversation delves into Intensive Short-Term Dynamic Psychotherapy (ISTDP) as an effective therapy for FND and other conditions, highlighting the importance of recognizing and processing emotions. The episode underscores the interconnectedness of physical and psychological health and provides practical guidance for managing chronic conditions.
00:00 Introduction to Dr. Leo Russell
01:33 Overview of Functional Neurological Disorder (FND)
02:19 Understanding Functional Symptoms
11:05 The Connection Between Emotions and Physical Symptoms
12:52 Exploring the Psychological Aspects of FND
23:47 The Impact of Chronic Conditions on Mental Health
24:35 Strategies for Managing Life with MS
34:46 Therapeutic Approaches and Psychotherapy
30:21 Finding Support and Resources
51:07 Conclusion and Closing Thoughts
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24 APR 2024 · Embark on an enlightening journey with Dr. Marco Quarta through the innovative realm of longevity medicine and aging research. Delve into groundbreaking research on combating age-related diseases, rejuvenating senescent cells with RNA-based therapies, and the quest to revolutionize our approach to health and longevity. Gain insights into measuring biological age, the challenges of eternal life, and the promising advancements in anti-aging therapies. This podcast explores the future of longevity medicine, offering hope and understanding for future medical breakthroughs for long term conditions such as Multiple sclerosis.
00:00 Welcome to BeeWellWithMS: Exploring Longevity Medicine
00:20 Dr. Marco Quarta: A Pioneer in Aging and Regenerative Medicine
03:08 The Personal Mission Behind Dr. Quarta's Research
07:42 Understanding Longevity Medicine: A Deep Dive
14:25 The Intersection of Aging and Multiple Sclerosis
17:36 The Promising Future of Senolytics in Treating Aging
24:55 Navigating the World of Supplements and Personalized Care
33:03 Challenges and Opportunities in Longevity Medicine Research
35:40 Exploring Predictive Health Tools and Challenges
36:27 The Importance of Supplement Quality and Brand
37:38 Senolytics: The Zombie Cell Hunters
39:20 Revolutionizing Medicine with Cellular Rejuvenation
44:35 The Potential for Human Longevity and Ethical Considerations
51:59 Understanding Biological Clocks and Aging
59:04 The Future of Anti-Aging Therapies and Longevity Medicine
01:03:05 Navigating Resources for Longevity Medicine
Useful resources on longevity medicine:
www.phaedon.institue
Website of Rubedo: http://www.rubedolife.com/
Website of Turn is http://www.turn.bio/
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10 APR 2024 · In this episode we delve into the evolving landscape of multiple sclerosis treatment, focusing on generics and biosimilars. It features a conversation with pharmacist Lucy Wessels, highlighting the safety, effectiveness, and cost benefits of generics and biosimilars in managing MS. The discussion emphasizes the importance of patient education, collaborative decision-making with healthcare providers, and dispelling misconceptions like the 'nocebo' effect around these treatment option.
00:00 Welcome and Introduction to the Episode
01:06 Understanding Generics and Biosimilars in MS Treatment
03:42 Diving Deeper: The Difference Between Generics and Biosimilars
11:58 Addressing Concerns: Side Effects and Tolerability
14:34 Enhancing Patient Understanding and Acceptance
20:22 The Nocebo Effect and Its Impact on Treatment Perception
24:34 Future of MS Treatment: Embracing Generics and Biosimilars
31:52 Concluding Thoughts and Key Takeaways
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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other...
mostra di più
Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other organs that controls our thinking, emotions, physical and general health.
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
mostra meno
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
Informazioni
| Autore | Dr Agne Straukiene |
| Organizzazione | Dr Agne Straukiene |
| Categorie | Salute e benessere |
| Sito | - |
| aniukas@gmail.com |
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