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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other...
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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other organs that controls our thinking, emotions, physical and general health.
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
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Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
BeewellwithMS podcast by Dr Agne Straukiene
BeewellwithMS podcast by Dr Agne Straukiene
Dr Agne StraukieneSostieni il Podcast
Esplicito
11 NOV 2024 · In this episode of BeeWellwithMS, Dr. Agne Straukiene interviews Amy Harbour, an experienced MS nurse from the UK who leads a team and manages 1k MS patients. Amy shares her daily responsibilities, including conducting clinics, home visits, triaging patient inquiries, and blood monitoring. She also highlights the importance of emotional support, patient education, and managing expectations, especially during MS flare-ups and progression. The discussion delves into challenges faced by MS nurses, the evolving role of MS nursing, and the critical need for adequate funding and support. Amy emphasises the significance of holistic care, patient education, and kind communication between healthcare providers and patients. The episode aims to bring awareness to the essential work of MS nurses and encourages a compassionate approach to patient care.
00:00 Introduction to the Episode
00:20 Meet Amy Harper: An Experienced MS Nurse
01:58 A Day in the Life of an MS Nurse
05:15 Challenges and Support in MS Nursing
10:11 Coordination of Care in MS
16:08 Managing MS Symptoms and Flare-Ups
24:06 Building Trust and Emotional Support
29:05 The Importance of Reassurance and Communication
31:35 Managing Patient Expectations with MS
32:46 Holistic Approaches and Lifestyle Changes
36:55 Challenges Faced by MS Nurses
45:05 Future of MS Nursing and Digital Advancements
49:17 Advice for Newly Diagnosed MS Patients
50:55 Addressing Misconceptions and Final Thoughts
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22 OTT 2024 · In this episode of the BeeWellwithMS Podcast, host Dr. Agnes Straukiene MS Neurologist interviews Associate Prof. Tarunia Arun, an MS neurologist, to explore the updated Association of Bristish Neurologists (ABN) guidelines in 2024 for multiple sclerosis treatment. Key themes include early intervention with high-efficacy disease-modifying therapies (DMTs), ensuring equitable access to MS treatments, family planning, and managing comorbidities. They discuss the role of autologous hematopoietic stem cell transplantation (AHSCT) and emphasise lifestyle management. This episode offers valuable insights for clinicians, patients, and caregivers on optimising MS care with the latest ABN guidelines. Download full version of ABN guidelines here: https://drive.google.com/file/d/13Ib2JrX9sW68w_pXoKFwvl2w8ovbRH4S/view
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2 OTT 2024 · In this episode of the BeeWellWithMS podcast, hosted by Dr. Agne Straukiene, an MS neurologist, key insights and reflections from the ECTRIMS 2024 conference in Copenhagen are shared. The event, featuring over 8,000 attendees, spotlighted emerging MS treatments, including high-dose vitamin D3, BTK inhibitor from the Hercules and Gemini two trials, and the updated McDonald criteria for MS diagnosis. Various interviews with MS experts and MS patients provide further discussion on topics such as MS fatigue, MS sleep disorders, cognitive function in MS, and the potential role of digital technology in MS treatment and holistic patient care. Despite some disappointing findings regarding statins for MS progression, the conference emphasized the importance of ongoing MS research, early MS diagnosis, and new approaches to measuring success in MS treatments.
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12 SET 2024 · In this episode of 'BeeWellwithMS', Dr. Agne Straukiene MS Neurologist is joined by Professor Jeremy Hobart for a discussion on advancements in measuring health outcomes for multiple sclerosis (MS). Professor Hobart, a renowned clinician and advisor, elaborates on the evolution of measurement tools, their impact on current practices, and the increasing focus on patient-centered outcomes. The conversation highlights the extended history of instruments like the Expanded Disability Status Scale (EDSS) and the need for innovations to enhance personalised medicine. They discuss the limitations of these historical tools, ethical considerations in MS research, and the importance of structured and sensitive measurement processes. Despite challenges, there are promising developments in utilising real-time data and patient-based assessments to improve clinical outcomes and treatment efficacy in MS, emphasising a call for coordinated global efforts and advancements in clinical trial designs.
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1 SET 2024 · In this episode of BeeWellwithMS, Neurologist provides valuable advice for managing multiple sclerosis during the transition from summer to autumn. The discussion covers handling anxieties related to the new school year, the importance of seasonal vaccinations such as flu and HPV, and creating a cozy home environment for the colder months. The host emphasises the importance of batch cooking, adjusting wardrobes for the changing temperatures, and ensuring home safety with tools like non-slip mats. Managing fatigue, maintaining skin care, staying hydrated, and continuing physical exercise are also highlighted as essential practices. The episode concludes with tips on holiday preparation, the use of assistive technologies, and ensuring pets' comfort during the colder season. Additionally, a reminder is given to take daily Vitamin D3 supplements.
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1 AGO 2024 · In this enlightening episode of "BeeWellwith MS," Dr. Agne Straukiene explores the transformative role of digital platforms in the self-management of multiple sclerosis (MS). Joined by Finn Moxson, an experienced MS coordinator, the discussion delves into the integration of technology into patient care, emphasizing the importance of self-management and the significant impact of digital health tools.Key Topics Covered:
- Importance of Self-Management in MS:
- The role of self-management in enhancing the quality of life for people living with MS.
- The limitations of conventional assessment tools like the Expanded Disability Status Scale (EDSS) and the Multiple Sclerosis Functional Composite (MSFC).
- Digital Health Tools:
- Introduction to the Patient Knows Best (PKB) digital platform used at Torbay Hospital.
- Real-world outcomes from the PKB User Experience Project.
- Integration of patient-reported outcomes (PROMs) into MS management to capture the full spectrum of the patient experience.
- Global Patient Reporting Outcomes Initiative:
- The initiative’s aim to bridge the gap between clinical research and patient care by integrating patient-reported outcomes.
- The significance of patient voices in shaping effective care strategies.More info read here: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2024.1407257/full
- Challenges and Solutions in Digital Platform Implementation:
- Addressing digital literacy and cognitive issues among the MS population.
- Strategies for improving recruitment and engagement with digital platforms.
- Future Directions and Innovations:
- Plans for further development of digital tools, including augmented reality for motor and cognitive function assessment.
- The importance of interconnected health records and a unified approach to patient-reported outcomes.
Guest Insights: Finn Moxson shares his background in psychology and his experience as a clinical research practitioner. He discusses his role in coordinating the PKB platform, the benefits observed from its use, and the positive feedback from patients. He emphasizes the necessity of continuous communication and education to ensure successful engagement with digital tools.
Call to Action: Listeners are encouraged to engage with digital health tools, participate in surveys and questionnaires, and contribute to the ongoing improvement of MS management. Agne and Finn invite listeners to share their experiences and join the conversation on social media and the podcast’s website.
Closing Note: Self-management is a vital aspect of living well with MS, and digital tools offer empowering support. By incorporating these tools into daily routines, patients can take a proactive role in managing their health and improving their quality of life.
Contact Information: Listeners can reach out with questions, comments, and suggestions for future episodes through social media channels or the podcast’s website at http://www.healthcare.org
Prisms Toxonomy article: https://pubmed.ncbi.nlm.nih.gov/26377727/#:~:text=Results%3A%20The%20PRISMS%20taxonomy%20comprises,term%20condition%20or%20their%20carer.
Our Connect plus app: https://www.hci.digital/case-studies/connectplus-app-ms-case-study/
Stay Connected: Follow "BeeWellwithMS" on social media for more resources and updates.
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22 LUG 2024 · Agne, a neurologist, leads a guided meditation focused on giving and receiving to help individuals with chronic conditions. The meditation aims to cultivate inner strength, acceptance, and compassion. Participants are encouraged to create a comfortable and safe space for a relaxing experience.
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26 GIU 2024 · In this episode of 'BeeWellwithMS' podcast, host Dr. Agne Straukiene Neurologist discusses the impact of heat waves on individuals with multiple sclerosis (MS), particularly focusing on the Uthoff's phenomenon and pseudorelapse. She explains that increasing body temperature can temporarily worsen MS symptoms and provides strategies to manage overheating, including using various cooling gear like vests, scarves, hats, portable fans, and cooling towels. Additionally, Dr. Straukiene offers practical advice on staying cool, such as seeking air-conditioned environments, staying hydrated, taking breaks, and consulting healthcare providers for persistent symptoms.
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15 GIU 2024 · In this engaging episode of BeeWellwithMS, Dr. Agne Straukiene hosts and guest speaker Associate Professor Will Young from the University of Exeter dive deep into the transformative potential of augmented reality (AR) and motion and cognitive tracking technologies in multiple sclerosis (MS) care. They explore the exciting MS PARAMS Phase One Study, which aims to validate these innovative tools for assessing motor and cognitive functions in MS patients. Professor Young shares his fascinating journey through research in rehabilitation psychology and sensory cueing, shedding light on the profound impact AR could have on enhancing patient care. They discuss the study's goals, the technical challenges to anticipate, and the promise these technologies hold in making MS assessments more accurate and personalized. Listeners are invited to get involved in this groundbreaking research, with detailed information on how to participate in the study. This episode is not just informative; it’s a call to action for anyone eager to contribute to the future of MS care. Join us, as we envision a future where cutting-edge technology empowers both clinicians and MS patients, ensuring better management and improved outcomes. Your involvement could be the key to unlocking a revolutionary approach to MS care. Don't miss out! If you are interested in learning more about the PARAMS phase one study, contact Prof Young at .
Episode Breakdown:
- 00:00 Introduction to BeeWellwithMS Podcast
- 00:36 Meet Associate Prof. Will Young: A Pioneer in AR Research
- 01:11 Exploring the MS PARAMS Phase One Study
- 01:34 The Journey into Augmented Reality
- 03:52 Technical Validation and Study Objectives
- 07:01 Challenges and Benefits of AR in MS Care
- 19:10 Participant Recruitment Process and Study Details
- 30:44 Conclusion and How to Get Involved
Tune in and discover how you can be part of this innovative step forward in MS care.
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25 MAG 2024 · A series of interviews and discussions highlighting the importance of raising awareness for multiple sclerosis (MS) at Torbay and South Devon NHS Foundation Trust.
00:00 Introduction
01:47 Interview with Finn Moxon - Importance of Raising Awareness
03:30 Interview with Suzanne ( MS Society) - Spreading Awareness
05:08 MS Admin Team Insights
04:56 Importance of Early Identification - Sarah Hughes MS nurse
06:00 Engagement with the coleagues experts
07:08 Encouraging Lifestyle Management
09:50 Closing Remarks
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Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other...
mostra di più
Beewellwithms discusses brain health and increased in prevalence neurological brain condition such as Multiple Sclerosis(MS) and how our brain works living with MS and what is the connection with other organs that controls our thinking, emotions, physical and general health.
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
mostra meno
Dr Agne Straukiene is experienced Neurologist working in MS for 14+ years. She is MS service and clinical research network lead and chief and principal investigator for various commercial and non- commercial clinical trials. She has pioneered in medical innovations and co-designed Connect plus app, MS Patients know best self- management platforms. Dr Straukiene regularly consults pharmaceutical, NHS and technology development companies. Dr Straukiene and her team won the international MS Brain Health award in 2022.
Informazioni
| Autore | Dr Agne Straukiene |
| Organizzazione | Dr Agne Straukiene |
| Categorie | Salute e benessere |
| Sito | - |
| aniukas@gmail.com |
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