TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.

TSC Talks!

TSC Talks; Episode 29, Charting a Course Home. TSC Mom, Heather Little, Describes How She's Managed & Overcome Infinite Challenges with TSC.

14 feb 2019 · 1 h 21 min. 19 sec.

Capitoli

01 · Diagnosis-From initial symptoms to receiving official diagnosis

3 min. 12 sec.

02 · Infantile Spasms Diagnosis, Treatments, Medications & More

11 min. 2 sec.

03 · Brain Surgery. The process of finding an adequate location, Medicaid approval, post operative recovery & more

23 min. 22 sec.

04 · Educational Issues, Behavioral Challenges, Further Seizure Episodes

36 min.

05 · Family Impact. Heather describes impact of chronic stress from TSC challenges, how she got help, the impact on her son,

52 min. 22 sec.

06 · Recommendations for the Parent/Caregiver, What Heather's up to now with Harmony Aromatics, etc.

1 h 9 min. 27 sec.

Descrizione

mostra di più

From a mismanaged initial TSC diagnosis in her daughter to struggles getting treatment for Infantile Spasms, challenges finding an adequate setting for brain surgery, educational and behavioral issues as well as personal and family impact, Heather Little has experienced much of what TSC care and management involves. She shares honestly in a clear & articulate manner that despite repeated obstacles & frustrations beyond belief, quality of life, peace of mind and hope are possible! This episode has something for all those in the TSC & Special Needs Communities as she touches on most of the experiences one will encounter at some point as they navigate this often uncharted path of TSC management as affected individuals and/or parent/caregivers of loved ones affected. Well worth your time!

mostra meno

Commenti

Accedi per lasciare un commento

Informazioni

Autore	Jill Woodworth
Sito	-
Tag	#autism #brainsurgery #chronicdisease #epilepsy #familysupport #hope #iamtsc #infantilespasms #mentalhealth #parenting #ptsd #raredisease #selfcare #specialneeds #tuberoussclerosiscomplex