For our most recent podcast episode, I sat down with Jessica Wolff, a mother who has endured loss and 2 very different NICU journeys. For part one of this podcast, she shares personal details on her very complicated twin pregnancy and the difficult choices they had to make along the way. She reflects back on regrets both she and her husband, Pat have experienced as well as what helped them cope through their daughter, Lily’s 256-day NICU stay.

Jessica explains what helped them make the decision whether or not Lily should have a tracheostomy placed and she speaks candidly about what their expectations were after Lily’s tracheostomy placement, versus their reality. She offers frank advice for NICU families, especially those with similar situations who have children with feeding issues, ostomies, bronchopulmonary dysplasia or BPD, pain medication withdrawal, tracheostomies, and what going home looked like for their family with a ventilator-dependent child. 

You will be amazed by what this family has been through, but even more so by their strength and resiliency. Sweet Lily has touched so many lives in her short 4 years, and this is just the beginning of her story, I know she’ll pull on your heart strings as well. So sit back and listen to part one of this family’s story with Jessica Wolff. 


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