New Report Estimates the Number of Rare Diseases is More Than 10,000
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Descrizione
Kirk Lamoreaux, Senior Healthcare Strategist, discusses ‘The Power of Being Counted,’ a report that was recently announced an estimated 10,867 rare diseases are known. As Mr. Lamoreaux explains, ‘The Power...
mostra di piùAs Mr. Lamoreaux explains, ‘The Power of Being Counted’ was developed by RARE-X to determine a more accurate count of the actual number of rare diseases. Determining this number is difficult, largely due to the lack of a global definition for rare disease. Getting an accurate count is important in order to represent the full spectrum of the rare disease community and describe the true socioeconomic impact on the lives of patients, families, and society.
Informazioni
Autore | Peter Ciszewski, CheckRare |
Organizzazione | CheckRare |
Sito | - |
Tag |
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