My Race Against the Clock - My Conversation with Seth Rotberg
10 mar 2022 ·
47 min. 12 sec.
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Descrizione
After watching his mom succumb to Huntington's Disease, a rare genetic neurological disorder with no treatment and no cure, Seth, at age 20, decided to see if he carried the...
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After watching his mom succumb to Huntington's Disease, a rare genetic neurological disorder with no treatment and no cure, Seth, at age 20, decided to see if he carried the gene. The test results came back positive. He shares what it's like to live with this knowledge and how he tries to balance holding onto hope for a different future with accepting the brutal reality of his situation. In the meantime, he is not waiting around for treatment of a cure for HD. He is pushing the needle forward and advocating for others like himself. He is a gift to humans.
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Informazioni
| Autore | MHNRN, LLC |
| Organizzazione | MHNRN |
| Sito | - |
| Tag |
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