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When Dan and Meghan’s 5-year old son Ryan was born with a rare genetic disorder that causes severe developmental delays—they didn’t know where to turn. Social media research led them to a specialty that helps children and their families deal with all aspects of a serious illness.

This is Ryan’s palliative care story.
When Dan and Meghan’s 5-year old son Ryan was born with a rare genetic disorder that causes severe developmental delays—they didn’t know where to turn. Social media research led them to a specialty that helps children and their families deal with all aspects of a serious illness. This is Ryan’s palliative care story. leggi di più leggi meno

4 anni fa #care, #millerdieker, #palliative, #pediatric, #podcast, #syndrome