Today’s conversation is with Samantha and Addison, the parents to 3 year old Sydney from Ceresco, NE who has been diagnosed with Infantile Neuraxonal Dystrophy; a very rare genetic disease that only affects 300-500 people worldwide. Sydney has a profound impact on anyone she comes in contact with
and leaves an imprint on peoples hearts. This episode lets us in on who Sydney is and her complicated medical journey.



Connect with Addison and Samantha
https://www.facebook.com/groups/sydthekid/

Connect with Go Shout Love:
https://goshout.love
https://www.instagram.com/goshoutlove/
https://www.facebook.com/goshoutlove/